Visualizing the Long Covid experience

As a highly allergic and reactive person with multiple autoimmune conditions, I am likely at risk for Long Covid. I’ve closely followed the news about this mysterious and pervasive new condition and read about its debilitating symptoms. But until now, I hadn’t personally known anyone with Long Covid.

Recently, I had a chance to help a Covid long-hauler create visuals to represent her experience. I’ve done this with many others, often those with long, complex health journeys that are difficult to ‘see’ and recount. As I got started with Sophie (not her real name), I wondered: what does Long Covid really look like? And is there value in visualizing a patient’s journey for such a recent condition, even if it only spans a year or two?